Cavan’s Walk, Run, and Family Fun Day is the cornerstone of our annual fundraising efforts. We are hoping to raise $50,000 at the August 13th event at Ann MacArthur Primary School in Locust Valley, NY.
Participants and teams can raise funds leading up to the event and come together on Event Day to celebrate! We’ll walk or run a mile or two together, there will be kids’ races, face-painting, food, carnival games, etc., etc., etc.
Ann MacArthur Primary School Fields
100 Ryefield Road
Locust Valley, NY 11560
August 13th 2022
10:00 am: Check-in and Festival Start
10:15 am: Kids’ Fun Run
10:30 am: Walk, Run, and Field Events
11:00 am – 1:00 pm: Festival, Food and Activities
Register or Donate at https://www.classy.org/event/cavans-walk-and-family-fun-day-2022/e396858
About four years ago, our bright, articulate, creative 12-year-old son, Cavan, was diagnosed with a rare, progressive, potentially fatal mitochondrial disease called Kearns-Sayre Syndrome (KSS). The mitochondria in our cells are responsible for creating 90% of the energy needed to sustain life and support organ function. When mitochondria malfunction, organs begin to fail. People with mitochondrial diseases can lose their eyesight, hearing, motor and pulmonary function, and the ability to control their heart rhythms, which can lead to sudden death. There is no cure for mitochondrial disease; there is no medical treatment to slow down or prevent the disease’s progression.
Because there is no cure for KSS, we must find one. We have already raised over $300,000, and we are committed to raising a total of $500,000 to provide the world’s top mitochondrial scientists with the support they need to perform breakthrough research on KSS.
Please sign up, help us fundraise, and then join us on August 13th at 10:00 am!
Can’t join us? Not a problem! You can donate to a participant, fundraise with a donation page or a Facebook Fundraiser!